Health in the Time of Coronavirus

The staff member that answered confirmed the appointment was moving forward. She said, “Essential appointments are not cancelled.”

How is everyone doing? I had other writing planned…and then COVID-19.

Baltimore businesses and other nonessential services have been closed for a week. I’m not alone in my anxiety about missing appointments that help me function, help me participate in society. My social media presence looks pretty rosy—I know. That’s curation. When the endometriosis pain is overwhelming, I can look at what I’ve done and remind myself that how I feel is not forever.

Reminding myself that it is not forever does not minimize the impact. The pain is real. I’ve lost an unreasonable amount of time. Previous symptoms have escalated, and new ones have been consistent for quite a few months. After the recommendation of Nancy Petersen (The legend!!—I introduced myself at the Endometriosis Summit which I will write a bit more about shortly, but I have to say that her in-person energy is warm and hopeful. She’s always trying to problem solve with the best information), I made an appointment with a new surgeon in the Baltimore area. The appointment was earlier this week. I worried and worried that it would be cancelled, so I called the day before. The staff member that answered confirmed the appointment was moving forward. She said, “Essential appointments are not cancelled.”

I thanked her profusely for staying open before hanging up to cry. Even with the incredible practitioners I work with, I haven’t acknowledged that endometriosis care is essential. I’ll bring this up in therapy tomorrow…probably. Honoring that endometriosis has brought life-altering pain is an ongoing and difficult place for me to go. For now, I want to say that I’m hopeful about my current care plan. Because even with some dear healthcare providers closed, I still have the support and knowledge they shared. In the pandemic, please remember to deep breathe and do healthy things to move. That’s the best advice I can give, I’m not a doctor! I’m a master of words.

I did want to share a bit more about the Endometriosis Summit earlier this month, especially because it’s a reminder that community continues to work hard. Go if you are able to attend, or watch the live-stream. I learned more in six hours than I had in the two years since my diagnosis. The pelvic floor PT, acupuncture, therapy were all validated. Another big development from the conference: Endo What? launched the School Nurse Initiative. They will send a free education toolkit to the school nurse of your choice. Even with schools closed, the organization announced today that nurses working from home can still receive the kits. Participate to help educators learn so the next generation doesn’t have to spend years suffering silently.

The book I was thinking about while writing this:

  • Beating Endo: How to Reclaim Your Life from Endometriosis by Dr. Iris Kerin Orbuch and Amy Stein DPT
  • Dear Girlsby Ali Wong
  • The Crying Bookby Heather Christle

Stay sweaty and glittery.

#cheesememe

It’s the beginning of Endometriosis Awareness Month, and today, I want to talk about cheese. I may be influenced by Jenny Lawson. I finished Furiously Happy on audiobook in January and I’ve been thinking humor and chronic illness since then. As I change my daily habits, I will never forget all that cheese has done for my gastrointestinal system and my poetry career.

This post will begin with a confession: I watch The Today Show almost every day. I’ve had this morning ritual since moving to Baltimore in 2010. Despite changes in career and habits (early bird to night owl, then back to early bird), Al Roker has stayed with me. He’s the only staff member that hasn’t changed in the eight year period, right? But I was betrayed on January 31, 2019. The segment was on CHEESE.

Per nutritionist advice, I have mostly eliminated dairy (anything with casein, the main protein in dairy) from my diet since February 2018. Endometriosis is exacerbated by inflammation. Dairy is an inflammatory food. I grumbled my way through it, and continue to grumble to this day. Are we at Harris Teeter? Let’s walk by the cheese area to check on my favorites. Look, Satori Balsamic Bellavinto Cheese is on sale and in a sample pod! I’m going to smell it. Ordering food? Homeslyce still has my favorite four-cheese garlic. Let me linger my mouse over the item, remembering the surprise of tart blue cheese with sweeter mozzarella, then build-my-own-pizza with dairy-free cheese, pineapple, and basil.

If a poet can have a brand (debatable), I built the early part of my career on sad poems about loneliness and cheese. Spreadable cheese, block cheese, string cheese (which I bite into, by the way)—cheese was comfort. The soft taste on the tongue, the salty sting, was a hug from the inside. There was even a Baltimore flurry of #cheesememe posts after an MFA classmate made a book out of Kraft Singles (3-4 years ago, I think). How is that book doing, anyway? I saw it about a year ago and it still hadn’t started decomposing. Giving up cheese was probably a good idea.

Anyway, it’s day two of Endometriosis Awareness Month. Click here for facts—the disease affects an estimated 176 million people worldwide. The disease isn’t limited to gender. Or cheese preferences. I’ll be posting more on my Instagram and on the blog throughout the month.

Stay sweaty and glittery.