Feeling Athletic & Chronically Ill: Not Polarized Feelings

Setting the scene: I’m propped up on the chaise section of the couch with a heating pad on my back, a cat snuggled on my shins, while I think about the Baltimore Running Festival 5k. I set a personal record by 30 seconds yesterday, running the 5k in 21:23. This post will recap the race, then I’ll explain what I did to prepare while managing endometriosis. I share my endometriosis journey not so you feel sympathy, but to share information and break down the isolation that comes with the alienating condition. I run for the endowarriors that can’t because their kidneys or diaphragm are compromised from the disease, or because a doctor has not referred them to excision surgery.

First, the easy part: the race recap. The weather was PERFECT. The course was mostly shaded by buildings in the 7:30am morning sun while the temperature was around 50 degrees. I wore a Team Baltimore Flowtank top and shorts because I know I overheat. 

Mile 1: 6:49 pace

The first mile felt easy. I started close to a 6 minute mile, so I pulled back. My virtual coach from Charm City Run sent positive affirmations throughout training to help me feel confident in controlling the first mile. I also saw Frugal Nutrition a bunch of times on her bike. Seeing her brought me so much joy!

Mile 2: 6:58 pace

            I worked on staying controlled and strong, repeating lines from “Polarize” in my head. It’s deciding where to die and deciding where to fight, deny, deny, denial. I find those lines comforting, anyway. The course layout also helped with staying strong. The turn-around was at the halfway point, which helped me chunk each half mile as a small goal to reach. 

Mile 3: 7:00 pace

            The race is billed as “completely flat”—not true!! Maybe compared to the traumatic hills in the half marathon and marathon, but NO. Most of the race is like running at a 1-3 elevation on the treadmill. The course is a common route for my training runs, so I paid careful attention to these changes in order to mentally prepare, and you know, not have unrealistic expectations. The stretch of Key Highway next to Rash Field tends to mess with me. To push through these soft elevation changes, I thought about all my 6:30-6:40 paced repeats in sprint runs workouts.

Last .1: 6:15 pace

            I turned the corner of Charles and Pratt to face my partner and his family screaming, seeing them gave me strength to push it with everything I had left. I had more speed than I expected. I feel more confident that mile 2 can be more aggressive, setting me up to also push harder on mile 3. My heart rate never crested 150. After multiple 5k bonks with a final mile slower than 8 minutes, I can finally see I’m capable of a consistent race pace. My coach planned quite a few runs at tempo pace for 30-40 minutes. They are physically and mentally challenging, but that made the 5k speed seem less daunting.

Will I ever have cute race photos?

I was in my ovulation phase the week before the race, which brings escalating pelvic pain and fatigue as I get closer to my menstrual cycle (yes, despite having excision surgery 16 months ago). I acknowledged my fear that it would be detrimental on race day, then did my best to let the feeling go. Wouldn’t it be great to one day run a race on the most energetic day of my cycle! Rest, despite three evening events at work, was a priority all week. Also: water, gentle stretching, and easy work at physical therapy for an unhappy hamstring. My partner and I partially prepped dinner to remove the dinner decision making after long work days.

How did I prepare in general? In addition to working with a virtual running coach, I have an incredible care team that includes pelvic floor physical therapy, acupuncture, and a gynecologist. I also take extra care to preserve my health by reading about the latest endometriosis research and hormonal cycles in training. If you are looking for a start in your endometriosis journey, join Nancy’s Nook on Facebook. The group has the latest research resources and doctor recommendations. The admins work tirelessly to remove misinformation.

An awful truth: most of my care is not covered by insurance. On top of endometriosis having a 7-10 year diagnostic window, most of the best care is still difficult to access. There are multiple reasons: dismissal of women’s pain (just read this essay by Tressie MacMillan Cottom), inadequate diagnostic procedures, or insurance companies deeming excision surgery medically unnecessary. When your body is experiencing pain for such a long time, it takes extra care after diagnosis to get close to a baseline of “normal,” which I like to think of as pain-free. I’m still not there. Working to balance my hormones and energy levels with everything listed above has been a start. I cycle syncto nourish my body, including easy activities at certain times, even when I’m working towards big running goals. 

More than the pain, I’m at a point where I can barely control my anger about inadequate care and access to resources. Writing to break the silence is my main advocacy now, though that will change as I meet more people working to create change.

Some books I was thinking about while writing this:

  • The Body Paper, Grace Talusan
  • Music for Wartime, Rebecca Makkai
  • Thick, Tressie MacMillan Cottom

Now, to take a week off from running to stretch, practice yoga, and learn new hamstring strengthening tools at physical therapy. Stay sweaty and glittery.

Curious Potential

Beating Endo: How to Reclaim Your Life from Endometriosis and ROAR: How to Match Your Food and Fitness to Your Unique Female Physiology for Optimum Performance, Great Health, and a Strong, Lean Body for Life arrived earlier this month. As I continue to work toward a sub-20 minute 5k, I’m also working on taking to heart the advice from my acupuncturist and pelvic floor physical therapist: running easy (or not at all) while I have my cycle. I’ll write more about my experience with those books and a virtual running coach after the Baltimore Running Festival 5k. I’m so curious about potential.

Why is not running so hard? I spent a decade being told my pain was normal. I was treated as if I was lying, weak, or hysterical. I needed to take the pill or suck it up. The message was that it was my fault I couldn’t stomach the pain. I was already practicing this kind of self-talk anyway–I swam on a team where the coach said that you’re recovering while sitting in class in between morning practice and evening practice. Unlearning those beliefs will take time. I’ve been repeating the phrase that Sonya Renee Taylor created an organization around: the body is not an apology.

I’m curious to see how radical self-love and athletics interact as I face the unknown. I’d like to think they’re not mutually exclusive if the movement is about exploring the unknown and internalized expectations. Taylor recounts an encounter with a free-diver as description of the journey of radical self-love: “learning the difference between fear and danger.”

As I read Taylor, my thoughts wander to Leslie Heywood and Shari Dworkin’s Built to Win: The Female Athlete as Cultural Icon: “Serious athletic training paradoxically produces a profound (and only partially mistaken) sense of the self-authorship of one’s body. This sense is one of the benefits of sport—you get beyond a culturally mediated sense of your body…And you feel that, through your labor, you’ve made yourself.” Have I used athletics to make myself? As much as I want to PR at 31, I run for the endo warriors who can’t. The ones whose kidneys and diaphragms are compromised by the disease, the ones whose healthcare won’t cover excision surgery. I see your fight and this is where I am in mine.

I’ve run with two Baltimore running groups this month: Faster Bastards and Riot Squad Running. Both groups are open and supportive and use positive self-talk when talking about new races. I love this, and plan to continue running with them while remembering that ultra-marathons may not be for me, though I have the joy of spending a Saturday morning running around the waterfront for 10 miles. It’s not lazy that I prefer 5k and 10k races. As my health changes, I’m going to continue to explore potential. 

Some books I was thinking about while writing this:

  • The Body Is Not an Apology: The Power of Radical Self-Love, Sonya Renee Taylor
  • Built to Win: The Female Athlete as Cultural Icon byLeslie Heywood and Shari Dworkin

On Spontaneity

Unfun confession: I am not spontaneous.

I never was—as a kid, the next swim practice was always on my mind. Lists were necessary for everything: swim-meets, vacations, reading, goals, my future house. I was creating vision boards before they were trendy. Every Sunday, I’d cut out my favorite furniture from weekly newspaper circulars for my future house. Could it have been the naming? Or was it having something to look at in the uncertain fog of childhood? Endometriosis has been part of my vocabulary, my identity, for over a year. I have a name for the cloud, but what can I do with it?

I’m still a list-maker and planner. It’s also all about tracking workouts, moods (I am always a mood), self-care, physical therapy, and sleep. Why? I have still been experiencing significant chronic pain and fatigue after excision surgery. Tracking symptoms is a way to see patterns and identify triggers. The scientific collection of statistics is a ritualistic calming. 

As I write this, I still think I should be more spontaneous. Instead, I plan my life around pain. My period is usually regular, so I plan everything—rest, social time, dates, workouts, events—around how I may be feeling. Otherwise, what if I’m caught in public without an arsenal of tampons? What if I’m stuck in a crowded event, in pain and unable to get to a seat? What if I have to cancel on someone because I didn’t anticipate how ghostly my body would feel? What if I’m so overwhelmed by symptoms I’m being a neglectful partner? Some days, I think a cane for high pain days would be a good investment. Yesterday, I barely made it up a flight of stairs before ceding to the elevator the rest of the day. This may be surprising when you look through my Instagram feed. That’s curation. I prefer to celebrate what feeds my soul online, especially when I need something positive to get through the hard days. I’m the master of the lean with the hip-cock. 

I have been turning the phrase by Rio Cortez in my head for what feels like years: “I have learned to define a field as a space between mountains.” Time and space have a different meaning when you’re racing your limits. Energy is collected in an attempt to maintain inertia. That’s not what her incredible chapbook is about, but the title has taken on a meditative role in my life. I will repeat from my Goodreads review: “if we can communicate how history has made us, there may be space to move forward.”

Tracking, naming, and identifying will probably always be part of the process. I’m an amateur adventurer in all of this. At least until there is some sort of cure for endometriosis.

Some books I was thinking about while writing this:

  • Laurel, Tyler Mendelsohn
  • I have learned to define a field as a space between mountains, Rio Cortez

Stay sweaty and glittery.

Joy in the Process

@friendwithendo posted a meme in the beginning of April that brought vague thoughts to the forefront of my mind. I’m embarrassed when I start sounding like I’m saying like back in the day, when I was a collegiate athlete. But my teen years were dedicated to the goal, then I was a Division I student athlete until 22. Shaking the mentality, or more specifically, the mentality that it’s not hard work if you’re not in pain, has been something I’ve grappled with while implementing the lifestyle changes that come with endometriosis.

Credit: Andrea Bell, Chicago, IL

How beautiful is that? Allow discovery and joy in your movement. In the momement. Despite pushing through daily pain with a smile, and doing things like causing a tibia stress fracture, I try to prove to myself that I’m not *weak* and have a high pain tolerance. Wuht?

I think of the line in Michael Downs’s The Greatest Show, “If people understood the full weight of the show they watched, they would be crushed.” Each day is a show I feel like I barely remember the lines to. I do not judge anyone else this harshly, I do not hold anyone else to this impossible, illogical standard. I don’t approach creating this way either. I consider myself a writer, exploring multiple genres, moving between fluid boundaries. Art isn’t limited to the page either. I look to multidiscliplinary artists like Lynne Price, Stephanie Barber, Jordannah Elizabeth, Amanda McCormick, and so many other incredible talents that transcend genre. Why am I not living like this when I’m moving? Is this impossible in running?

I tried something different when I ran the Charm City Run’s Sole of the City 10k earlier this month. A rigid personal best wasn’t on my mind. Since February, I had been on hormonal birth control and physically and mentally spiraling (I have stopped taking it and would like to say, if birth control helps you live the life you want, GOOD! Do you and you should not be limited in your access! It is not something I can tolerate. Yes, I am hard eye-rolling to all past and future individuals that say I should just get on birth control to make endometriosis go away. Read more here about how it is only a band-aid and not a long-term solution).

Even while struggling each day, I wanted to learn from the race. The course has a challenging hill during the final mile that broke me the previous year like the Baltimore Half Marathon broke my spirit in 2011. I’m looking at you, never-ending mile around Lake Montebello. I decided I wanted to negative split the Sole of the City, starting at an 8-minute mile pace that would be an effort but relaxed.

Dare I say the race was joyful? Despite the early spring humidity, the kind special to Baltimore where even your eyeballs are sweating, I was in relatively good spirits. It was probably the last time I wasn’t holding back tears or sobbing all weekend (I’m still looking at you, hormonal birth control). Reading Partners volunteers cheered at 26 points—one for each letter, yay, literacy!—an officer was singing for everyone at mile 2.5, which carried me to Charm City Run Fells Point blasting Kesha’s Timber around mile 3.5. Then I targeted someone a few paces in front that I had seen earlier in the race to bring me to the finish. 

Screenshot from my Garmin 235

My ability to hold pace was a pleasant surprise. As reference, when I’m not doubled-over from endometriosis and related symptoms, my tempo run pace is comfortably at a 7:20 per mile pace. Keeping a relaxed mind helped me hold the sustained moderate effort. I sort of approached the Charles Street 12 this way in September 2018, but if I’m being honest, I thought it was going to be a rare approach. I had excision surgery in April 2018 and I was cured, right? RIGHT?! Cue the reality of chronic illness.

I’m learning from the Baltimore Flow and incredible healthcare providers—shouts to Sustainability Wellness and Indigo Physiotherapy—to listen to my body. To look at it as more than something broken. To approach athletics how I approach creativity—with an eye for discovery. I have to be creative as I continue to chase a sub-20 minute 5k goal. I have to trust that when I feel well, the work will fall into place. While I’m not, there is a process and joy can exist in discovery.

Stay sweaty and glittery.

An Element of Control

In the spirit of crampedstyleblog’s #selfcarefebruary on Instagram, I’ve been looking closely at what I’m doing when my body starts to shut down. Last month, so many things were missing from daily routine: multiple rest days, dedicated stretching time to keep (my) hips open, allocated time to indulge in pleasurable reading. My body starts to rebel with pain and sour moods when I try to consistently crest 25 miles in a week, at least from what I’ve gathered through tracking my runs over the past couple of years. To try and do better, I’ve added a “self-care” column to my training log.

See! It’s real. I add text or glyphs to spice it up, like executing my glute and core physical therapy exercises are MONEY. Workouts I haven’t done yet are in pink. An aside—can we have a moment for the improvement in technology, from the inaccurate Nike running chips in vogue a decade ago to the relatively accurate Garmin technology of today?

Mileage and workouts might not seem important to everyone, but testing the limits of my body has been a lifelong habit. Swimming for hours a week, sucking in chlorinated air hoping that millions of strokes will lead to some sort of momentary glory. Racking the weight at incrementally higher amounts on the squat rack, knowing that my secret weapon was kicking underwater like a dolphin for fifteen meters at a speed faster than most of my peers. Tenacity is a piece of identity I’m not willing to forgo. Chronic illness changes this perception of invincibility.

I think of this quote from Sick when the attempts to feel alive, to feel healthy, seem out of reach:

“If you know a part of you is always dying, taking charge of that dying has a feeling of empowerment.”

There is something in pushing the limits, in feeling a rush, however it is found. There is an element of control, a belief that there is a choice.

I see overlapping threads in recovery memoir, illness accounts, and athletic feminist theory, like Leslie Heywood. My curiosity piques when the author pushes against the perfect story, the perfect feminist character, the story of what is supposed to be best for your health. These accounts, these protagonists, these people are not perfect plaintiffs. I’m looking at the complex stories broadly to identify threads, like The Recovering by Leslie Jamison, Pretty Good for a Girl by Leslie Heywood, Sick by Porochista Khakpour, Don’t Let Me Be Lonely by Claudia Rankine, and Annie’s Ghosts by Steve Luxenberg. There are more, but I think that brief list gives a smattering of the different approaches–in form and content.

I’m looking to expand my list, so please comment with recommendations. A few books I’ve been meaning to read: The Amputees Guide to Sex by Jillian Weise, The Carrying by Ada Limón, The Collected Schizophrenias by Esmé Weijun Wang, and Crumb-Sized by Marlena Chertock.

Thanks for reading. Stay sweaty and glittery.